Today, Arabella is absolutely amazing. Of course, she may have minor issues in the future, but if this terrible defect was a magazine, Bella would be on the cover. To think we were so close to losing her. So close to not giving her a shot to survive.

The time in the hospital felt forever but doing the research and talking to other people who had gone through CDH, and reading the stories on the Tiny Hero page helped me a lot. My baby girl is the strongest person I know!

CDH is not a death sentence. There is so much hope for these kids. You just need to believe in them and find a medical team that believes in them as well!

If you didn't look at my X-rays or the scar on my belly, you would never know there was anything wrong with me. I did so unexpectedly wonderful that the hospital kicked me out just before I turned 3 weeks old. The doctors have no explanation as to why I did so well. Now, do you believe in miracles? I'm living proof of one!

After losing one son to CDH, we were willing to do whatever we had to do to be sure Soren survived. Without hesitation, we booked our plane tickets and made our way to Florida to meet the infamous Dr. Kays.

After we were diagnosed, I spoke to a mom who told me that if God had told her the outcome, it wouldn't have allowed her to entirely rely on Him for the months of the unknown. God led us to JHAC and gave us the strength we needed each day to make it.

Jaxon recently turned one and is the happiest boy we have ever seen. He brings so much joy into our lives every single day. He's had some minor bumps in the road along the way, but each time he has bounced back stronger than before. He continues to amaze us every day with how far he has come, given where he started.

They began to explain to us that Haydn had a congenital diagrammatic hernia and would need a repair. They further explained that given his age, the chances of his survival were 50%. As I attempted to understand everything that was shared with me, I had no words.

Later a Facebook friend of a friend told us her story of her CDH baby and how they found hope through Tiny Hero and a CDH specialist, Dr. Kays, at Johns Hopkins All Children’s Hospital

Once we got to Gainesville the doctor there new exactly what it was. He wrote on a piece of paper, CDH. I had no idea what that even was. He told me it was a 97 percent survival rate but she would need surgery and a long hospital stay.

Our Strong for Penelope supporters and the CDH community have shown us so much love over this past year it is incredibly humbling. Without their support we would not have been able to relocate the 1,861 miles away from home with half of our family in St. Petersburg Florida and the other half in Pierre South Dakota.

When we received the news of the CDH, we were so devastated knowing the journey she would have ahead of herself, but we also were filled with so much hope because we knew that with the right team, she would do great.

Liam is such an extremely loving and happy little boy. Liam ran the CDH Marathon and has continued to overcome obstacles daily!

She continues to tell everyone how things will be. She's feisty, stubborn, and curious! She's on a feeding tube and oxygen 24/7. She has pulmonary hypertension. She's a warrior. She has a long way to go but every day she proves to us and the world that she's here for the long haul. Her lungs have grown, but not nearly as much as they should. But that doesn't stop her

Now she is 17 months. She gets her checkups every month with her surgeon, runs around, likes to eat. I am so grateful to have her here with us. She is a blessing. She has gone thru so much but she is strong. We Love our Tiny Hero.

He is almost a year old now only on oxygen at night and 2 of his 4 medicines are being weened down so we are almost at 2 medications a day. I can’t wait to see where my little warrior goes from here!!

Carley is now a wonderful, smart, sweet and caring 6 year old. She is in the 1st grade, she is testing as a 2nd grader, reading and spelling at a 3rd grade level. She plays Softball, does gymnastics, and is a Cheerleader.

Hi everyone. My name is Abigail. I was born with a diaphragmatic hernia (CDH). Doctors said I wasn't going to make it. Mom didn't have a baby shower for me until after I was born, just in case. But we had people praying and I started breathing by myself.

I have a 22 year old son who thrived against all odds. He got his private pilots license when he was 17 he was accepted into Rice University with a double major Cognitive Science, Classical Studies in Greek and Latin and a Neuroscience minor.

I remember my OB calling me to discuss the results over the phone and trying to prepare me for getting back poor blood results. He said “you are young and can try again for a perfect baby.” This made everything sink in. When I heard my doctor suggest termination, it made me think they would terminate in my shoes, and it immediately sank in how much of a battle my little boy had ahead.