CDH Hospitals: Johns Hopkins All Children’s Hospital (JHACH)
Why Families Choose Johns Hopkins All Children’s Hospital for CDH Treatment
When facing a diagnosis of Congenital Diaphragmatic Hernia (CDH), finding the right hospital is one of the most crucial decisions for families. Located in St. Petersburg, Florida, Johns Hopkins All Children’s Hospital (JHACH) is a leading choice for many families. Tiny Hero has sent more care packages to families choosing JHACH than any other hospital, a testament to the quality of care provided here. This guide will help you understand why so many parents trust JHACH for their baby’s CDH treatment.
Hospital Overview
JHACH is home to the first dedicated CDH unit in the world, consisting of 15 beds exclusively for CDH and ECMO patients. Led by Dr. David Kays, a world-renowned CDH specialist, this unit is designed to provide comprehensive care tailored to babies diagnosed with Congenital Diaphragmatic Hernia. Dr. Kays has treated over 600 CDH babies, achieving an impressive 98% survival rate for CDH babies without additional birth defects.
JHACH joined Johns Hopkins Medicine in 2011, allowing the hospital to collaborate with hospitals and medical researchers nationwide. With access to innovative treatments and cutting-edge technology, JHACH continues to advance CDH care.
Contact Information
Hospital Address: 501 6th Avenue South, St. Petersburg, FL 33701
Hospital Main Line: (727) 898-7451
CDH Coordinator, Joy Perkins: Joy.perkins@jhmi.edu
For more information, visit JHACH CDH Program.
Key Features of JHACH:
Dedicated CDH unit with a specialized team
On-site labor and delivery suites (Bayfront Health Baby Place)
Comprehensive follow-up care, including chest X-rays and echocardiograms
Child-Life Specialist team offering support for families
Advanced research opportunities through Johns Hopkins Medicine
The CDH Team at JHACH
The CDH team at JHACH is made up of highly specialized medical professionals dedicated to treating Congenital Diaphragmatic Hernia. Some of the key team members include:
Dr. David Kays
Medical Director of the Center for Congenital Diaphragmatic Hernia at JHACH
Leads the ECMO program and Fetal Diagnosis & Treatment program
Has treated over 600 CDH babies
Dr. Jason Smithers
Pediatric surgeon specializing in Esophageal and Airway Treatment (EAT) Program
Assists in CDH repairs, as CDH often affects the esophagus and airways
Dr. Stacey Stone
Neonatologist overseeing the care of all CDH babies at JHACH
Joy Perkins
Program Coordinator for the Center for Congenital Diaphragmatic Hernia
Works closely with families throughout their journey
Contact: Joy.perkins@jhmi.edu
Beyond the Medicine: What to Expect During Your Stay
JHACH provides a family-centered experience, ensuring parents and siblings have the resources they need while their Tiny Hero receives treatment. Each family receives a private hospital room equipped with:
Private bathroom and shower
Mini fridge and storage space
Recliner and convertible couch bed
24/7 parent access to the NICU
JHACH also has a dedicated CDH unit, meaning families stay in a community of others facing similar challenges. Many parents find comfort in connecting with other families during their hospital stay.
The hospital also offers free parking, activity rooms, a library, a parent business center, and multiple dining options. Parents can visit their Tiny Hero anytime, and the nurses are always available to help.
Housing Options for Families
Many Tiny Hero families choose to stay at the Ronald McDonald House (RMH), conveniently located next to the hospital. The Ronald McDonald House Charities of Tampa Bay provides three housing options for families:
St. Petersburg East House (largest house, next to JHACH)
Kaiden’s House (larger housing option for families)
These facilities offer comfortable accommodations, meals, laundry services, and community support. If RMH is full, contact Joy Perkins at Joy.perkins@jhmi.edu for assistance with alternative housing.
Restaurants & Dining Near JHACH
For dining, check out these options:
The Library – Located near JHACH, perfect for coffee, brunch, and truffle fries
Hawkers St. Petersburg – Street food-style small plates with a vibrant atmosphere
Oak & Stone Pizzeria – Family-friendly, known for its self-serve beer wall and gourmet pizzas
Red Mesa Cantina – A favorite among CDH nurses, known for its duck quesadilla
For more, visit Visit St. Pete Clearwater.
Things to do Near JHACH
On the rare occasion that you find yourself with free time – or simply need a break from hospital life – there are plenty of great activities in the area. Take a break with these activities:
St. Pete Pier – Playgrounds, splash pads, mini golf, and seasonal events
Salvador Dalí Museum – A world-class art museum showcasing surrealist works
Great Explorations Children’s Museum – Interactive exhibits perfect for young siblings
Florida Aquarium – Hands-on marine life experiences
ZooTampa – A fun outdoor escape for families
For more, visit Visit St. Pete Clearwater.
Getting Around St. Petersburg
FREE Downtown Looper Shuttle (PSTA Looper)
Ride-share services available
ParkMobile app for managing parking in downtown St. Pete
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