When facing a Congenital Diaphragmatic Hernia (CDH) diagnosis, choosing the right hospital is critical. Johns Hopkins All Children’s Hospital (JHACH) in St. Petersburg, Florida, is home to the world’s first dedicated CDH unit, led by renowned expert Dr. David Kays. With advanced treatment, family-centered care, and a 98% survival rate for CDH babies without additional birth defects, JHACH is a top choice for families seeking the best care for their Tiny Hero.

As we reflect on our time throughout this journey, our advice to other parents is to seek multiple medical opinions. It is essential to find a team who understands how each diagnosis collectively impacts the treatment options and care plan. We hope that her story reminds families that despite the uncertainty you may feel, especially with unexpected hurdles, there is real hope for both CDH and CHD!