While this journey has looked so different than how we had originally pictured it, our journey with Owen has been a transformative blessing in disguise. We're now a resilient family, stronger than we ever thought possible. Our mission is to empower Owen to thrive and spread hope to families affected by CDH, proving that it's not a death sentence and that there is hope for these tiny warriors. 

Ollie is almost two years old and the happiest, most loving, playful little boy. If you are a parent just finding out or in the thick of it, know that these Tiny Heroes are stronger than you think and will be ready to fight!

These babies are so strong and they will show you just how strong they are. They’re a miracle. Please, don’t lose hope. This is treatable. Do your research and follow your heart. It’s not a race, it’s minute by minute. Every little accomplishment matters, so celebrate them. Don’t give up hope!