Emma is now 15 years old and a Sophomore in High School. She is doing extremely well all around! She plays on her high school’s JV tennis team in the fall and plays indoor tennis in the winter.

You are never prepared for the "I'm sorry your baby has something wrong with her," especially after having a normal, healthy 14-month-old baby boy. But we couldn't be more proud of our baby girl. She is still making strides and already laughing and rolling over.

I set off on a journey with my mother to find someone willing to help my daughter.

As her strength and endurance built, she increased her feeding to the point that she no longer needed the feeding tube (which ran from her nose to her intestines). Her mommy and daddy are so proud of what a fighter she is and how determined she is to live!

She is now a healthy, happy, perfect 7-year-old. She's smart, kind, observant, and has a gentle soul. She is our miracle and our joy!

The CDH rollercoaster is rough, but you just have to keep your eyes on the prize: taking your baby home. After 134 days and having the Nissen procedure and a G-tube placed, she left the hospital on oxygen. One of the best parts? Her exit MRI showed no brain damage!

Makenna went through a lot in her first 18 months. But none of it matters, because she had a caring team on her side. She is a CDH survivor. She can talk, walk, and is truly exceptional! She runs around everywhere, and is one of the happiest kids I have ever met.

As he grew older, he became sick less often. Ian grew with no physical restrictions. He played soccer and basketball when he was younger, would ride his bike and skateboard, swim and go surfing. He would get more winded than some children when he would run long distances, but there was never anything he wanted to do that he couldn’t.