CDH Stories
Ella’s Story - Congenital Diaphragmatic Hernia (CDH)
I fought hard for my little girl all these months and will continue to. I questioned them, brainstormed and spoke up when I needed to. I wasn’t afraid to pull everyone in and advocate for family meetings when I got frustrated. My sweet Ella turned one this month and I am forever grateful to be her momma. She is truly a blessing and I am happy to have her here with us all today!
Lilith’s Story - Congenital Diaphragmatic Hernia (CDH)
Our family is so blessed to have only spent 33 days in the NICU with Lilith. Everyone was amazed with how well she was doing, and at 12 days old, I finally was able to hold her.
Elizabeth’s Story - Congenital Diaphragmatic Hernia (CDH)
Being able to hug her, see her smile, hear her babble is the best gift God could have given us. She's such a strong and intelligent baby. I can't wait to see what she does in life. I'm so happy Elizabeth chose us to be her parents.
Trey’s Story - Congenital Diaphragmatic Hernia (CDH)
Trey has been through a lot but always bounces back better than before. Yesterday, he started his senior year of high school. He is a strong, funny, and kind CDH survivor. Now, he is 17 years old and the light of our lives!
Elisha’s Story - Congenital Diaphragmatic Hernia (CDH)
This was a long hard battle. I would do it a hundred times over for the life of my baby. Elisha is a fighter, and I'm proud to say that. I think this helped him through it all. Today, he will be 15 in September.
Ryder’s Story - Congenital Diaphragmatic Hernia (CDH)
That day you first learn the words “Congenital Diaphragmatic Hernia” is one you will never forget. May 10, 2019, will forever be a hard day for me. Only two days before my first Mother’s Day, our world was shattered.
Cole’s Story - Congenital Diaphragmatic Hernia (CDH)
Cole continues to grow, laugh, and exceed our expectations every day. According to his pediatrician, he is in the 40-50 percentile for his weight, height, and head measurements.
Cooper’s Story - Congenital Diaphragmatic Hernia (CDH)
Cooper is our miracle and our CDH warrior! He is currently 8 months old, fully weaned from the NG tube, and doing so well!
Scarlett’s Story - Congenital Diaphragmatic Hernia (CDH)
We are so incredibly proud of Scarlett and everything she has overcome. She continues to amaze us daily with her strength, we are so blessed to be her parents, and we can’t wait to see what the future holds for her!
Pippa’s Story - Congenital Diaphragmatic Hernia (CDH)
You learn so much in those first few days. It's so much to wrap your head around. But we clung to the smallest things people said that gave us hope.
Brody’s Story - Congenital Diaphragmatic Hernia (CDH)
He has an extreme love of all sports but especially baseball and golf. I've been told his hand-eye coordination in these sports is as good, if not better than a 5-year-old at only two years old! He continues to amaze us with his sweet personality and talents.
Aero’s Story - Congenital Diaphragmatic Hernia (CDH)
After 57 days in the NICU, we were able to come home a couple of weeks before Christmas. October 11th will forever be a day to remember!
Jorja’s Story - Congenital Diaphragmatic Hernia (CDH)
She has defied all the odds. Home is where she belongs with her big brother, Leo. We are forever proud and grateful for her. There were many times we thought it was the end. We can't say thank you enough to all the healthcare workers for saving our warrior princess.
June Bee’s Story - Congenital Diaphragmatic Hernia (CDH)
Today, she thrives and still beats all odds. My baby is 2 now, but she's still our Tiny Hero.
Aubrey’s Story - Congenital Diaphragmatic Hernia (CDH)
Fast forward two months, and Aubrey is a happy and healthy six-month-old. She is eating pureed fruits and vegetables along with breast milk, working on rolling over, and having the time of her life in her new bouncer.
Paisley’s Story - Congenital Diaphragmatic Hernia (CDH)
God has been so good to us throughout this journey, and we could not ask for a better turn out for our baby girl!
Carsten’s Story - Congenital Diaphragmatic Hernia (CDH)
Although we will never know exactly why Carsten was born with CDH, we do know that he has shown us a kind of strength we did not know existed and the sheer determination to fight no matter what.
Kaidence’s Story - Congenital Diaphragmatic Hernia (CDH)
With every beautiful breath she takes and every high-pitch squeal we hear, we are reminded of God’s grace and the amazing work He is doing through Dr. Kays and the JHACH team.
Carter’s Story - Congenital Diaphragmatic Hernia (CDH)
We left the hospital at 41 days. She came home on .1 liter of oxygen and was off it in 3 months. Now, she is seven months and a thriving little girl.
Nolan’s Story - Congenital Diaphragmatic Hernia (CDH)
Nolan went home with no equipment and thrived. He continued to have digestion issues, reflux, but no one would know he has gone through so much. He is truly a Tiny Hero.