While this journey has looked so different than how we had originally pictured it, our journey with Owen has been a transformative blessing in disguise. We're now a resilient family, stronger than we ever thought possible. Our mission is to empower Owen to thrive and spread hope to families affected by CDH, proving that it's not a death sentence and that there is hope for these tiny warriors. 

Kash acts like a baby who was never hospitalized for 2.5 months and was never on ECMO/intubated. We have a wonderful team and physician to thank as well as an amazing God who guided us throughout our entire journey. Kash has the devoted backing of family and friends “Kash’s Krew” who gave us unconditional love and support while being so far away from home!

Our family is so grateful for the Tiny Hero organization. We never would have learned that we could save our daughter if it weren't for the Facebook group with so many people recommending specialty hospitals.  Our daughter would not have made it if we had stayed in the state for her care!

I dove into hours of research on CDH and joined every support group, forum, and community I could find. The CDH support network from Tiny Hero became our beacon of hope, providing us with the knowledge we desperately needed!

I'm so thankful for the care we received at John Hopkins. The entire CDH team on that floor is incredible and I will never forget them. I am also so thankful for the Tiny Hero community and the hope I received when I had none!

This was a long hard battle. I would do it a hundred times over for the life of my baby. Elisha is a fighter, and I'm proud to say that. I think this helped him through it all. Today, he will be 15 in September.