CDH Stories
Charlotte’s Story - Congenital Diaphragmatic Hernia
Charlotte came home on December 29th with an NG tube and no medications except Pepcid and vitamin D. Within a week of being home, the pediatrician allowed us to take out the NG tube since Charlotte was taking a bottle and breastfeeding just fine. Our sweet girl is absolutely a Tiny Hero, and I hope that she continues to beat everything thrown at her!
Rakari's Story - Congenital Diaphragmatic Hernia (CDH)
The doctors told us if they had to remove Rakari from the machine before he was ready to get off, it would be a chance of him passing. But he didn’t. He’s a fighter, and he got off ECMO December 21, 2018.