CDH Stories
Reese's Story - Congenital Diaphragmatic Hernia (CDH)
Dr. Kays spent 3 nights at her bedside doing everything possible to keep her off ECMO. He informed us that she was a lot sicker than we anticipated and was not improving much, so on day 4 he decided to do her repair surgery.
Charly's Story - Congenital Diaphragmatic Hernia (CDH)
I don’t remember much about our conversation except for that she asked me what Charly’s name was. She asked if we had other kids, how old, what her name was. She asked how long we’d been married. We were people to her. Not another opportunity to experiment. We scheduled a call with Dr. Kays within a few days and spoke with him for over an hour.
Reagan's Story - Congenital Diaphragmatic Hernia (CDH)
What was supposed to take 3-4 hours turned into about a 10-hour surgery. Dr. Kays had said in his years of experience, he had never had to put a baby on ECMO in the middle of surgery, and he had never encountered anything like her diaphragm and her other anatomical abnormalities that she had.
Savannah’s Story - Congenital Diaphragmatic Hernia (CDH)
I remember thinking, “Oh, just a hernia? A hernia’s not that bad.” But of course later that night, after a good bit of googling, we discovered that CDH is not just a hernia.
Eleanor's Story - Congenital Diaphragmatic Hernia (CDH)
She has given us new experiences, precious friendships, and a new perspective on how precious life is. And Eleanor’s unwavering smile and strength throughout her fight has been nothing short of inspiring. She truly is my tiny hero.
Delta's Story - Congenital Diaphragmatic Hernia (CDH)
You are never prepared for the "I'm sorry your baby has something wrong with her," especially after having a normal, healthy 14-month-old baby boy. But we couldn't be more proud of our baby girl. She is still making strides and already laughing and rolling over.
Darci's Story - Congenital Diaphragmatic Hernia (CDH)
I set off on a journey with my mother to find someone willing to help my daughter.
Evelyn's Story - Congenital Diaphragmatic Hernia (CDH)
As her strength and endurance built, she increased her feeding to the point that she no longer needed the feeding tube (which ran from her nose to her intestines). Her mommy and daddy are so proud of what a fighter she is and how determined she is to live!