CDH Stories
Athena’s Story - Congenital Diaphragmatic Hernia (CDH)
This journey hasn't been easy, but you never know about things like this until it happens to you—all of the sleepless nights at the hospital, surgeries, all the waiting, the nerves. The list could go on and on. Every CDH journey is different but we are so alike in many ways.
Isabella’s Story - Congenital Diaphragmatic Hernia (CDH)
Isabella is our little rockstar. She brings so much joy to those around her. We are praying for your Tiny Hero, too, and believing in your miracle; they really do happen!
Aria’s Story - Congenital Diaphragmatic Hernia (CDH)
We are amazed by our little superstar and could not believe how fast she became well enough to go home. She's now 8 weeks old, feeding and growing well.
Elizabeth’s Story - Congenital Diaphragmatic Hernia (CDH)
Being able to hug her, see her smile, hear her babble is the best gift God could have given us. She's such a strong and intelligent baby. I can't wait to see what she does in life. I'm so happy Elizabeth chose us to be her parents.
Trey’s Story - Congenital Diaphragmatic Hernia (CDH)
Trey has been through a lot but always bounces back better than before. Yesterday, he started his senior year of high school. He is a strong, funny, and kind CDH survivor. Now, he is 17 years old and the light of our lives!
Elisha’s Story - Congenital Diaphragmatic Hernia (CDH)
This was a long hard battle. I would do it a hundred times over for the life of my baby. Elisha is a fighter, and I'm proud to say that. I think this helped him through it all. Today, he will be 15 in September.
Ryder’s Story - Congenital Diaphragmatic Hernia (CDH)
That day you first learn the words “Congenital Diaphragmatic Hernia” is one you will never forget. May 10, 2019, will forever be a hard day for me. Only two days before my first Mother’s Day, our world was shattered.
Jack’s Story - Congenital Diaphragmatic Hernia (CDH)
Jack is almost 6. He has had a bumpy ride. While he is still facing challenges, he doesn't let them get in his way. He is my Tiny Hero.
Leah’s Story - Congenital Diaphragmatic Hernia (CDH)
Leah is the most content, alert and happy wee girl! We appreciate every single minute with her. She is perfect, and people are shocked when they learn her story as she doesn't look like she was ever sick!
Cole’s Story - Congenital Diaphragmatic Hernia (CDH)
Cole continues to grow, laugh, and exceed our expectations every day. According to his pediatrician, he is in the 40-50 percentile for his weight, height, and head measurements.
Cash’s Story - Congenital Diaphragmatic Hernia (CDH)
Cash currently holds the record for the quickest CDH recovery at that children’s hospital. He is now 5 1/2 months old and thriving!
Owen’s Story - Congenital Diaphragmatic Hernia (CDH)
If you take anything from this long story of ours, it's that your kid isn't the only one that survives CDH; you do, too. None of this is your fault, and you're doing the best you can, so allow yourself some grace.
Brynlee’s Story - Congenital Diaphragmatic Hernia (CDH)
I'm forever grateful to her surgical team and the NICU staff, as well as our community, who rallied around us with donations, support, and prayers. Today, Brynlee is off all of her medication, developmentally on track, and the joy of my heart.
Avery’s Story - Congenital Diaphragmatic Hernia (CDH)
We never expected her CDH journey to be that quick, but we are so lucky that it was. You would never know what that first month of her life entailed, and there will never be enough thank you’s in the world to thank Dr. Hedrick and every other doctor/nurse who took care of her. She is our strong and brave little girl, and she has been a rockstar since day one.
Cooper’s Story - Congenital Diaphragmatic Hernia (CDH)
Cooper is our miracle and our CDH warrior! He is currently 8 months old, fully weaned from the NG tube, and doing so well!
Scarlett’s Story - Congenital Diaphragmatic Hernia (CDH)
We are so incredibly proud of Scarlett and everything she has overcome. She continues to amaze us daily with her strength, we are so blessed to be her parents, and we can’t wait to see what the future holds for her!
Navy’s Story - Congenital Diaphragmatic Hernia (CDH)
Today Navy is one year old. He's SO close to walking. He eats food of all kinds. He loves dancing, swimming in the pool and going to the beach. He gets a huge smile whenever he sees Mickey Mouse or his sister. He is his mommy's sweet cuddler and daddy's wild baby.
Teagan’s Story - Congenital Diaphragmatic Hernia (CDH)
Teagan continues to amaze us with her strength and resilience. She is the sweetest girl. She loves her brother and her dog. She has the biggest smile and a light that shines so bright. There is hope after a CDH diagnosis, and we can’t imagine our family without our tiny hero Teagan!
Matthew’s Story - Congenital Diaphragmatic Hernia (CDH)
In his short three years, this brave boy has taught us more than we ever could have imagined. He lives life to the fullest and touches everyone's heart. We are so very proud of all of his accomplishments!
Landon’s Story - Congenital Diaphragmatic Hernia (CDH)
CDH is just a part of who my Landon is now, but because of what he has gone through, he can do anything. Landon is a survivor. He is a CDH survivor. He is an ECMO survivor.