CDH Stories
Ella’s Story - Congenital Diaphragmatic Hernia (CDH)
I fought hard for my little girl all these months and will continue to. I questioned them, brainstormed and spoke up when I needed to. I wasn’t afraid to pull everyone in and advocate for family meetings when I got frustrated. My sweet Ella turned one this month and I am forever grateful to be her momma. She is truly a blessing and I am happy to have her here with us all today!
Bryson’s Story - Congenital Diaphragmatic Hernia (CDH)
Bryson is a vibrant, active, happy little boy who loves life and having fun! His surgery was performed laparoscopically, leaving not even a trace of a belly scar and his only scar is on the back where they stitched the hold from the breathing tube. His team has no reservations about his growth and development.
Chrissie’s Story - Congenital Diaphragmatic Hernia (CDH)
On June 29, 2020, we were filled with excitement as we headed to the anatomy scan to find out if we were having a boy or a girl. While the scan was going on, we were so happy to see our baby, but suddenly our radiologist said she needed to call the doctor. It was then that we learned our baby girl would be born with Congenital Diaphragmatic Hernia.
Sinead’s Story - Congenital Diaphragmatic Hernia (CDH)
We are so proud of Sinead, she never let CDH get to her, and she continues to amaze us every day. To all parents that have CDH kids - it can sometimes be a long battle, but well worth it!
Hayden’s Story - Congenital Diaphragmatic Hernia (CDH)
We still can't believe Hayden is doing as well as he is today. He has oxygen support at ¼ liter and does have a G-tube, but it seems pretty minor compared to what they were expecting for our little guy. He is both a miracle and a blessing, and we thank God every day that he proved everyone wrong.
Theo’s Story - Congenital Diaphragmatic Hernia (CDH)
Being a parent to a CDH baby is a whole load of anxiety, but they are the strongest babies in the world! Believe in yourself and believe in your baby. They are miracles!
Empress’ Story - Congenital Diaphragmatic Hernia (CDH)
Seeing what she's been through with CDH and how far she's come never gets old! She will be one in just a few days, and we are so thankful for her amazing surgeon and everyone involved in her care.
Kyson’s Story - Congenital Diaphragmatic Hernia (CDH)
Kyson is thriving at home. We are so blessed and thankful for our little miracle. CDH is a scary diagnosis but these little warriors are such strong fighters! Have faith in your Tiny Hero - they can accomplish anything!
Lilith’s Story - Congenital Diaphragmatic Hernia (CDH)
Our family is so blessed to have only spent 33 days in the NICU with Lilith. Everyone was amazed with how well she was doing, and at 12 days old, I finally was able to hold her.
Callie’s Story - Congenital Diaphragmatic Hernia (CDH)
Callie is doing really well, and her personality is emerging now that she is home. She still sees a lot of specialists very regularly, and we still have a lot of obstacles ahead of us, but we will continue to fight!
Sophia’s Story - Congenital Diaphragmatic Hernia (CDH)
Sophia has been thriving at home ever since. She’s developing normally and growing like a weed. No one who meets her would ever know how rocky her start was!
Athena’s Story - Congenital Diaphragmatic Hernia (CDH)
This journey hasn't been easy, but you never know about things like this until it happens to you—all of the sleepless nights at the hospital, surgeries, all the waiting, the nerves. The list could go on and on. Every CDH journey is different but we are so alike in many ways.
Isabella’s Story - Congenital Diaphragmatic Hernia (CDH)
Isabella is our little rockstar. She brings so much joy to those around her. We are praying for your Tiny Hero, too, and believing in your miracle; they really do happen!
Aria’s Story - Congenital Diaphragmatic Hernia (CDH)
We are amazed by our little superstar and could not believe how fast she became well enough to go home. She's now 8 weeks old, feeding and growing well.
Elizabeth’s Story - Congenital Diaphragmatic Hernia (CDH)
Being able to hug her, see her smile, hear her babble is the best gift God could have given us. She's such a strong and intelligent baby. I can't wait to see what she does in life. I'm so happy Elizabeth chose us to be her parents.
Trey’s Story - Congenital Diaphragmatic Hernia (CDH)
Trey has been through a lot but always bounces back better than before. Yesterday, he started his senior year of high school. He is a strong, funny, and kind CDH survivor. Now, he is 17 years old and the light of our lives!
Elisha’s Story - Congenital Diaphragmatic Hernia (CDH)
This was a long hard battle. I would do it a hundred times over for the life of my baby. Elisha is a fighter, and I'm proud to say that. I think this helped him through it all. Today, he will be 15 in September.
Ryder’s Story - Congenital Diaphragmatic Hernia (CDH)
That day you first learn the words “Congenital Diaphragmatic Hernia” is one you will never forget. May 10, 2019, will forever be a hard day for me. Only two days before my first Mother’s Day, our world was shattered.
Jack’s Story - Congenital Diaphragmatic Hernia (CDH)
Jack is almost 6. He has had a bumpy ride. While he is still facing challenges, he doesn't let them get in his way. He is my Tiny Hero.
Leah’s Story - Congenital Diaphragmatic Hernia (CDH)
Leah is the most content, alert and happy wee girl! We appreciate every single minute with her. She is perfect, and people are shocked when they learn her story as she doesn't look like she was ever sick!