Noah is now a very happy and healthy little boy. Without the help of all the incredible nurses, surgeons, doctors, ECMO specialists, and the Heart Link Charity, we wouldn’t be where we are now. We will always be eternally grateful.

Today, two years later, Catharina is thriving. She’s an energetic, curious, and joyful little girl. She now attends daycare, where she loves music, clapping, waving at people, and flipping through books. She has her own personality—determined, affectionate, and strong.

The days are getting easier, and Abigail is continuing to grow. Her sister Lillian is hitting all her milestones and developing normally. It's nice having a community like TinyHero to connect and share experiences with other CDH parents around the country.

Today, Kaisen is a happy little boy who will turn 2 soon. He is definitely my little CDH warrior, my little fighter. This boy was fighting hard for his life and deserves all the happiness he has today.

Today, Gabby is almost 2 years old and a pretty typical toddler. She is walking and climbing everywhere and is a total chatterbox. Our wish is that others can find comfort in our story, know they are not alone, and that there is so much hope for kids with CDH.

Fast forward to today, having been in the NICU for 2 months, she was able to go home with no oxygen or G-tube. Today, she is 1, and we have to watch her breathing as she is developing asthma, but she is thriving so strongly.

After 180 days, Faith came home. We had to learn all of the ins and outs of the G-tube and being on oxygen. She had a feeding and med schedule that was to be followed. Faith is a miracle. She has grown and learned so much!

If you are reading this story with fear for the future of your own CDH baby, I pray that you are encouraged by Thomas’ story. Surround yourself with success stories and knowledge. I encourage you to dig deep to find answers to better advocate for your child in and out of the hospital. These babies are so strong and will amaze you!

We are forever grateful for the incredible care Nicholas received at CHOP. There aren’t enough words to express how thankful we are to the doctors, nurses, and everyone who walked alongside us during this journey. Nicholas is truly our miracle, and we couldn’t be more proud of him!